Lowe Syndrome Association

The LSA is an international, voluntary, non-profit organization made up ofrents, friends, professionals, and others who are interested in Lowe syndrome (LS), a rare genetic condition that affects boys. We've been working since 1983 to develop a community of support and encouragement for families affected by LS.Our work is guided by our purposes: * to foster communication among families * to promote a better understanding of the syndrome * to provide medical and educational information * to encourage and support research.special needs services