The Phelan-McDermid Support Group 22q13 Deletion Syndrome

Support for those affected by 22q13 Deletion Syndrome

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We connect families around the world through our Regional Representative Network and a series of social network sites.  The foundation supports regional in-person gatherings to decrease the feeling of isolation that often exists in the rare disease and autism community.

The Foundation moderates four official Facebook pages including a PMSF Foundation Facebook page that includes the latest news, a closed Facebook page for parents and primary caregivers who are members of PMSF, a Legislative Advocacy page, and a closed Regional Representative page. The Foundation also maintains social media content on Twitter, Instagram, and YouTube. Our international partners and members have established independent social media pages and many PMS/22q13 special interest pages have been independently established.  Click on the links below to view the official PMSF Facebook pages:

+ PMSF Foundation(open)

+ PMSF Family Closed Group(closed)

+ PMSF Legislative Advocacy(open)

+ PMSFRegional Representative(closed)